Video of Baby Sucking on His Twins Cheek

past Jillian Johnson with commentary from Dr. Christie del Castillo-Hegyi

Landon would be five today if he were still alive. It's a very hard birthday–five. It'due south a milestone birthday. Virtually kiddos would be starting kindergarten at this age. But not my piffling guy. I wanted to share for a long time about what happened to Landon, merely I always feared what others would say and how I'd be judged. But I want people to know how much deeper the pain gets.

I share his story in hopes that no other family e'er experiences the loss that we have.

Jarrod and I wanted what was all-time for Landon as every parent does for their child. Nosotros took all of the classes. Bought and read all of the books. We were ready! Or and so nosotros thought….every class and book was geared toward breastfeeding and how it's so important if you want a healthy kid. Landon was born in a "Baby-Friendly" hospital. (What this means is everything is geared toward breastfeeding. Unless you'd had a breast augmentation or cancer or some serious medical reason as to why yous couldn't breastfeed, your baby would not be given formula unless a prescription was written by the pediatrician.)

Sleeping comfortably a few hours after birth

Landon was built-in full-term weighing 3360 yard or vii lbs. seven oz, built-in by urgent cesarean due to fetal intolerance to labor after the h2o had cleaved. [Previous publication of this web log said he had an emergency c-section. He was delivered by low transverse incision over 12-14 minutes, which is considered an urgent, not a STAT section.] Apgars were viii and nine and he was stabilized. He was transferred 2.5 hours later to the Mother-Baby Unit of measurement and returned to his mother. He exclusively breastfed with excellent latch for 15 – 40 minutes every 1-2 hours.

Landon, is 12 hours erstwhile.

Landon was on my breast – ALL OF THE Fourth dimension . The lactation consultants would come in and come across that "he had a dandy latch and was doing fine" but there was ane who mentioned I  may accept a problem producing milk . The reason she gave was that I was diagnosed with PCOS (polycystic ovarian syndrome) and it was simply harder for women with hormone imbalances to produce milk. She recommended some herbs for me to take when I got out of the hospital.

While in the infirmary, his mother's take chances factors for failed and delayed lactogenesis II (copious milk production) were identified past the IBCLC-lactation consultant. They were deadline diabetes, PCOS, problems with infertility, small-scale, widely spaced breasts with minimal growth during pregnancy, being a first-time mom, and emergency c-section. Despite that, she was encouraged to exclusively breastfeed. She was closely monitored by a nurse, lactation consultant, and physician support. Her babe's latch was rated as excellent.

Landon cried. And cried. All of the time. He cried unless he was on the breast and I began to nurse him continuously. The nurses would come in and swaddle him in warm blankets to assist get him to slumber. And when I asked them why he was always on my breast, I was told it was because he was "cluster feeding." I recalled learning all nigh that in the classes I had taken and being a commencement-time mom, I trusted my doctors and nurses to help me through this – even more then since I was pretty heavily medicated from my emergency c-section and this was my first baby. But I was wrong. I've learned I have to be my child's number one advocate.

Past the starting time 24 hours, he had nursed a total of 9.iii hours, had zero moisture diapers and 4 dirty diapers. Past 27 hours, he had lost 4.76%. His nursing sessions became longer and longer until he was on the breast continuously past the second day of life. On the second twenty-four hours, he produced 3 wet diapers and half-dozen muddy diapers and nursed for almost 14 hours total. By 53 hours of life, he had lost ix.72%.

At this time, the scientific literature on wet and muddy diaper production has shown that the number of diapers produced have no correlation with adequacy of milk intake in the first iv days of life. The only study on diaper counts has shown that even newborns who lose excessive weight can produce upwards to 6 wet and dirty diapers a day.  In add-on, at this time, the Baby-Friendly Hospital Initiative has produced no data on the rubber of newborn fasting and weight loss acquired by sectional colostrum feeding and what degree of weight loss protects a kid from brain-threatening complications like hyperbilirubinemia, hypernatremic aridity, and hypoglycemia. So far, the scientific literature shows that babies who lose greater than vii% of their birth weight are at the highest risk of developing excessive jaundice and hypernatremia to levels that can crusade long-term developmental disability. Information technology has too been found that 10% of good for you, term, exclusively breastfed babies undergoing the Baby-Friendly protocol experience hypoglycemia to levels that are associated with 50% declines in the ability to pass the literacy and math proficiency exam at ten years of age, fifty-fifty if aggressively corrected.

Constant, unsatisfied nursing and comfortless crying are ii of the signs of newborn starvation that lead to brain-threatening complications. If a child is receiving a fraction of their caloric requirement through early exclusive breastfeeding, they can feel astringent hunger and thirst, which is why they will cry inconsolably and breastfeed continuously when it is the only source of calories and fluid they are offered. If a mother'due south colostrum does not meet the child's caloric requirement, they will breastfeed for hours a mean solar day in an attempt to relieve their hunger. A kid who is "cluster-feeding" may actually fire more calories breastfeeding than they receive in return, which can outcome in fasting conditions and accelerated weight loss. The constant nursing and crying often plant in newborns past the second day of life take been called "The Second Night Syndrome" in the breastfeeding industry. This is as well when mothers receive the most pressure to avoid supplementation in club to increase rates of exclusive breastfeeding at discharge. Babies who reach critically low levels of reserve fuel and fluids before their mother'southward milk comes in can be found lethargic with compromised vital signs after hours of constant nursing and fussing, at which fourth dimension they are often diagnosed with hypoglycemia, excessive weight loss, and/or hyperbilirubinemia, all markers of starvation.

Did you know that newborns aren't supposed to weep all of the fourth dimension? They're supposed to eat and sleep and dirty their diapers. I had no thought that he was inconsolable because he was starving – literally. And when a babe is but on the chest, how do we gauge how much they're actually getting out? Sure, there should be wet and soiled diapers, and weight checks, right? And where is the limit as to weight loss and a minimum for the diapers inverse?

Beingness discharged with visible weight loss.

Landon was discharged at 64 hours (2.5 days) of life having lost 9.7% of his birth weight continuously and exclusively breastfeeding with a mother whose milk had non come in. These are routine and unremarkable findings in newborn babies discharged home to exclusively breastfeed. At this time, in that location are no studies using standardized developmental testing or serum markers of starvation that show that allowing babies to lose up to x% of their nativity weight protects them from brain- and life-threatening complications, despite broad-spread perception that it is normal for exclusively breastfed babies to lose. Therefore, Landon'due south mother was given no instruction to supplement. He was discharged with next-solar day follow-up.

And then nosotros took him home….not knowing that afterwards less than 12 hours home with us, he would accept gone into cardiac arrest caused past dehydration, from unintended starvation because I was the mother who had no colostrum. for my baby. And the all-time advice I was given past 1 of his NICU doctors while he was on life support is sure chest is best, but follow with the bottle.

This way you know your baby has eaten enough….if only I could go back in fourth dimension.

Landon continued to continuously breastfeed at dwelling house and was found unresponsive, pulseless, and blue after eventually falling asleep from cluster feeding. His parents called 911. Per EMS, he was asystolic (no heart charge per unit) and he received CPR en route to the local ER. By the time they arrived at the ER, he was establish to have pulseless electrical activity (heart rate with no blood pressure). There, he was intubated and received several rounds of epinephrine. He was hypothermic with a temperature of 93.1 F. Afterwards 30 minutes of CPR, no cardiac activity was found on ultrasound. With parental consent, CPR was stopped and he was left on the ventilator while continuing to receive Four saline. xx minutes later, with IV fluids, he regained his pulse. He was transferred to a Level Three NICU to become the caput cooling protocol for babies that experience a brain injury. He was diagnosed with hypernatremic aridity and cardiac arrest from hypovolemic stupor.

Landon in the NICU on full life support.

I even so have many, many days of guilt and questions – what if I would've merely given him a bottle? And anger because how would I accept known. I trusted my wellness care professionals to protect my infant from harm. I retrieve when Stella, my daughter was born, and she was always repose. I kept asking the nurses what was wrong with her. They said cipher. She's doing what she's supposed to. Sleeping. Eating. And it was so that I realized that it wasn't normal for a newborn to cry as much as Landon did. He was just crying out from his hunger.   But I didn't know. I should've known.  I all the same struggle daily feeling as though I failed him.

Landon received a brain MRI in the hospital which confirmed brain injury consistent with hypoxic-ischemic encephalopathy or brain injury from oxygen deprivation due to low blood pressure from dehydration and cardiac arrest. He was diagnosed with diffuse seizure activity on EEG, the consequence of severe, wide-spread brain injury. Given his poor prognosis, he was taken off life support 15 days later. The autopsy written report deemed the causes of expiry were hypernatremic aridity followed by cardiac arrest causing hypoxic-ischemic encephalopathy (lengthened brain injury).

Jill held Landon as he took his last breaths.

That little boy gave me 10 of the well-nigh incredible life-changing months. I've been humbled. Challenged. My relationships take fallen apart. Some take come up back together. I've learned forgiveness. And the true significant of "life is short." I honey hard – to a fault. But I couldn't live with myself knowing his decease was in vain. I've learned and then many lessons. I've learned the true meaning of compassion and unconditional honey. Thank y'all for taking the fourth dimension to read this. And at present I invite you to picket 200 beautiful moments in our ten months with Landon.

http://youtu.be/lp8PJ_P6eOk

Happy fifth Birthday my sweet boy. I love you to the moon and back.

— Jillian Johnson

The Fed is Best Foundation is defended to the prevention of newborn and baby starvation from insufficient exclusive breastfeeding. We do so past studying breastfeeding stories sent by mothers and the scientific literature on breastfeeding complications that lead to infant brain injury and decease. Since the beginning of our campaign near ii years agone, we have received tens of thousands of newborn and infant starvation stories leading to the complications of hyperbilirubinemia, dehydration, hypernatremia,  hypoglycemia, and failure to thrive. These complications occur because the current breastfeeding guidelines take non been studied for safety, operates with little awareness of the caloric and fluid requirements of newborns nor the corporeality transferred to babies until complications take already occurred. "Just one bottle" can save a kid from these tragedies as it is frequently a female parent's starting time clue that a child is, in fact, starving from exclusive breastfeeding.

If your baby is experiencing distress and signs and symptoms of starvation, we encourage you lot to advocate for your child. We encourage mothers to notify hospital administrators if they are being pressured to avert supplementation to convalesce their child's hunger. You have the right to feed your child and your child has the right to be fed. No one but your baby knows how close they are to empty. The only way they can communicate distress is by crying. Listen to your baby and heed to your instincts.

Our message is simple. Feed your baby. Feed them equally much as they demand to stay safety and satisfied.

How to supplement your baby until your milk comes in:

How To Prepare For Supplementing When Breastfeeding Your Baby In The Hospital

Jillian Johnson: My Message To Parents During World Breastfeeding Week-Just One Canteen

The Loss Of Our Son Has Devastated Our Family – This Time I Volition Be Supplementing With Formula Afterward Every Nursing session

NIGERIAN Female parent SPEAKS OUT Well-nigh HER Infant'S DEATH AFTER Existence TOLD TO KEEP EXCLUSIVELY BREASTFEEDING: WHAT SHE WANTS HUMAN RIGHTS ORGANIZATIONS TO KNOW

My Infant Suffered And Almost Died–Why Are The Risks Of Exclusive Breastfeeding Non Taught To Mothers?

Just One Canteen Would Have Prevented My Baby's Permanent Brain Harm from Hypoglycemia

Feeding Your Babe—When Supplementing Saves Breastfeeding and Saves Lives

U.Southward. Study Shows Babe-Friendly Hospital Initiative Does Not Piece of work

NICU Nurse Discloses Newborn Admission Rates From Breastfeeding Complications in BFHI Unit of measurement

Nurses Are Speaking Out Near The Dangers Of The Babe-Friendly Health Initiative

Neonatal Nurse Practitioner Speaks Out About The Dangerous And Mortiferous Practices Of The BFHI

The Loss Of Our Son Has Devastated Our Family unit – This Time I Volition Be Supplementing With Formula After Every Nursing session

Dr. Nicole Rex Warns Nigh Dangers of Baby-Friendly Hospital Initiative at USDA Dietary Guidelines Meeting

Hospital Drops Baby-Friendly Program Subsequently Doctor'southward Baby Was Harmed

WHO 2017 Revised Guidelines Provide No Evidence to Justify Exclusive Breastfeeding Rule While Evidence Supports Supplemented Breastfeeding

Letter to Doctors and Parents About the Dangers of Bereft Sectional Breastfeeding

Two Physicians Draw How Their Baby-Friendly Hospital Put Their Newborn in Danger

The '2nd Night Syndrome' is Abnormal and This is Why

Merely One Canteen Would Accept Kept My Baby Off Life Support

Fed is Best Statement to the USDA Regarding the Harms of the Baby-Friendly Infirmary Initiative

Italian Doc Talks Nearly Her Daughter Starving In A Baby-Friendly Hospital And Clinic Nether The Care Of IBCLCs

Nurses Quit Considering Of Horrific Experiences Working In Baby-Friendly Hospitals

Nurses Are Speaking Out Near The Dangers Of The Infant-Friendly Health Initiative

"Is Baby-Friendly Safety?": BFHI Condom Bug Discussed at National Neonatology Briefing

Thank you FOR YOUR Involvement IN THE FED IS BEST FOUNDATION!

Our mission statement is:

The Fed Is Best Foundation works to identify disquisitional gaps in the current breastfeeding protocols, guidelines, and education programs and provides families and wellness professionals with the most up-to-appointment scientific research, education, and resources to practice safe infant feeding, with breast milk, formula or a combination of both.

Above all, we strive to eliminate infant feeding shaming and eliminate preventable hospitalizations for insufficient feeding complications while prioritizing perinatal mental health.

HOW Y'all CAN Back up FED IS BEST

There are many ways you can support the mission of the Fed is All-time Foundation. Please consider contributing in the following means:

1. Bring together usa in any of the Fed is All-time volunteer and advancement, groups. Click here to join our wellness care professionals group. Nosotros have: FIBF Advocacy Group, Research Group, Volunteer Group, Editing Group, Social Media Group, Legal Group, Marketing Group, Perinatal Mental Wellness Advancement Group, Private Baby Feeding Support Group, Global Advocacy Grouping, and Fundraising Group.    Please send an email to Jody@fedisbest.org  if you are interested in joining any of our volunteer groups.
2. If you need infant feeding support, we have a private support group–Bring together us here.
3. If you lot or your baby were harmed from complications of insufficient breastfeeding please ship a message tocontact@fedisbest.org
4. Make adonation to the Fed is Best Foundation. Nosotros are using funds from donations to cover the cost of our website, our social media ads, our press and mailing costs to reach health providers and hospitals. We do non accept donations from breast- or formula-feeding companies and 100% of your donations get toward these operational costs. All the work of the Foundation is accomplished via the pro bono and volunteer work of its supporters.
5. Sign our petition!Help us reach our policymakers, and drive alter at a global level. Help us stand up for the lives of millions of infants who deserve a fighting take a chance.   Sign the Fed is Best Petition at Modify.org today, and share information technology with others.
6. Share the stories and the message of the Fed is All-time Foundation through word-of-mouth, by posting on your social media page and past sending our FREE infant feeding educationalresources to expectant moms that y'all know. Share theFed is All-time entrada letterwith everyone you know.
7. Write a letter to your health providers and hospitals about the Fed is Best Foundation.Write to them nigh feeding complicationsyour kid may take experienced.
8. Impress out our letter of the alphabet to obstetric providers and mail them to your local obstetricians, midwives, family practitioners who provide obstetric care and hospitals.
9. Write your local elected officials well-nigh what is happening to newborn babies in hospitals and enquire for the legal protection of newborn babies from underfeeding and of mother'due south rights to honest informed consent on the risks of insufficient feeding of breastfed babies.
10. Send us your stories.Share with usa your successes, your struggles and everything in between. Every story saves another kid from experiencing the same and teaches another mom how to safely feed her babe. Every vox contributes to change.
11. Send us messages of support.We piece of work every single day to make infant feeding prophylactic and supportive ofevery mother and kid.  Your messages of support keep us all going.
12. Shop atAmazon Smileand Amazon donates to Fed Is All-time Foundation.

Or simply send us a bulletin to find out how you can help make a difference with new ideas!

Donate to Fed is Best

For whatsoever urgent letters or questions almost baby feeding, please exercise not go out a message on this folio as it will non get to united states of america immediately. Instead, please email christie@fedisbest.org.

Thank you and we await frontwards to hearing from y'all!

Click hither to join us!

Click on the infographic below to print for your reference.

Parents tell us they were not taught how to supplement their babies safely, if necessary to prevent exclusive breastfeeding complications.

For more than information on how to protect your baby from feeding complications due to early exclusive breastfeeding, please read and download the Fed is Best Feeding Plan, a way to communicate your feeding choices to your health care providers.

In addition, please read and download the Fed is Best Weighing Protocol to prevent newborn dehydration and failure to thrive.

Lastly, for more detailed data, please watch our educational videos onPreventing Feeding Complications.

Our full list of parent resources tin exist found on our Resource Page.

If you wish to help parents larn how to protect their newborns from accidental starvation, delight share this story and sign our petition to demand that the CDC, the AAP, the U.Southward. Surgeon General and the WHO/UNICEF Baby-Friendly Hospital Initiative warn parents about the dangers of newborn and infant starvation from insufficient exclusive breastfeeding. Become to https://fedisbest.org/sign-our-petition/.

Delight consider making a donation to the Fed is Best Foundation to support its mission of providing safe infant feeding didactics and back up and raise awareness on the harms of insufficient infant feeding.

We believe all babies deserve to exist protected from hunger and thirst every unmarried day of their life and we believe that education on Condom Baby Feeding should exist free. If you would like to make a donation to support the Fed is Best Foundation's mission to teach every parent Safe Infant Feeding, please consider making a 1-time or recurring donation to our arrangement.

Donate to Fed is Best

Thank you and so much from the Founders of the Fed is Best Foundation!

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Source: https://fedisbest.org/2017/02/given-just-one-bottle-still-alive/